Laughing and crying, you know it's the same release. Joni Mitchell

Laughing and crying, you know it's the same release. Joni Mitchell

Sunday, November 6, 2011

The Rothfeld Center VS The Marino Center

Photo of the boxing portion of a Chess-Boxing ...Image via WikipediaIn one corner, a small private practice for integrative medicine and in the other corner, a large group practice for integrative health. Both are heavyweights in holistic treatment, but which one will be the winner? I'm being treated by doctors at both centers and after three or four rounds, so far, no knock-outs, but certainly some good punches.

Actually, I've been meaning to post this article for some time, but life has intervened. Which is a good thing because it means I'm feeling good enough to have a life! My time is not just about going to the doctor or the acupuncturist or the physical therapist anymore. I'm writing for my local paper, going to my daughter's cheer leading competitions, visiting my son at college and going to my first college football game - tailgating and all. And of course, Mother Nature threw us a curve ball with a freak October snowstorm that knocked out our power for several days. I didn't realize how much we depend on electricity until I didn't have it - lights, heat, TV, computer, internet, phone - and in some cases even flushing the toilet! It was certainly a lesson in gratitude and I'm grateful that the power is back on so I can write and post this article.

I was reading through a sleep journal I kept last winter and I realized how far I've come. I was waking every few hours all night every night; my hot flashes were explosive; I was depressed and anxious; I was bone-tired fatigued and everything hurt. My neurotransmitters were barely registering and my adrenals were flat-lined. I was a mess! But I have to give much of the credit to The Rothfeld Center for getting me back to some semblance of a normal life. They have been treating me aggressively since last spring and I feel like it's finally paying off. I had to wait five months to get into see the doctor at The Marino Center, so I feel like the more recent treatment at The Marino Center has been ancillary to the treatments I've been receiving at The Rothfeld Center.

Now, a direct comparison between the approaches of The Rothfeld Center and The Marino Center:

Diagnosis:
When I first went to The Rothfeld Center, I went through a battery of tests, including blood tests, spit tests, vision/neuro-toxin tests, heavy-metal tests and DNA tests. Then once those results came back, I had more blood tests to get more specific results. I must say that the labs screwed up my blood tests more than once causing me to go back for more blood draws, which was annoying and painful. Based on all that information, Dr. Rothfeld told me that I have toxins in my body and neuro-toxins in my brain. It could have been from mold or some other toxin. Also, because of my DNA, I'm extremely vulnerable to toxins and it's harder for my body to get rid of the toxins once I have them. He also diagnosed me with insulin resistance and thryroid resistance syndrome. In addition, my neurotransmitters and adrenals were shot.

When I finally got into see the doctor at The Marino Center he was surprised that his top go-to tests for fibromyalgia had never been performed on me. I was surprised, too, given the battery of tests I had just undergone at The Rothfeld Center. I had a blood draw at the office to determine food sensitivities to 180 different foods and I took home a stool test to look for yeast in the gut. I won't go into details about the stool test but it wasn't pretty! I was glad I took both tests because they showed problems that weren't uncovered at The Rothfeld Center. The stool test showed that I had both good bacteria and bad bacteria in my gut. It also showed that I had candida, or yeast, in my gut, too.

Treatment:
infusion bagsImage via WikipediaEven before my test results came back at The Rothfeld Center, Dr. Rothfeld put me on magnesium-IV therapy, his go-to treatment for fibromyalgia.Once my results came back, he started me on a no-starch diet for the insulin resistance, which means no grains or starchy vegetables. Then he put me on a detoxification program, including a cleanse and a protocol of medications and supplements. He also put me on several supplements to boost my neurotransmitters and support my adrenal system. For the thyroid resistance syndrome, I'm following Wilson's T3 Protocol, using T3 supplementation to boost my metabolism.

Once I got my stool test results back at The Marino Center, Dr. Bordiuk was able to target my treatment. The lab had tested my sample with various anti-boitics on the bacteria and anti-fungals for the yeast so we could see which ones actually worked. I was on the anti-biotic/anti-fungal protocol for two to three weeks. I haven't noticed a huge improvement in my symptoms, but perhaps my symptoms would have been worse had I not treated the bacteria and yeast in my gut. As for the food sensitivities, Dr. Bordiuk told me to follow the 4-Day Rotation Diet. Foods without any "stars" are fine to consume. Foods with one star can be eaten every four days. For instance, if I eat blueberries or pinto beans on Monday, I can't eat them again until Friday. Foods with two or three stars must be avoided for four months. Then I can try them again one at a time. If I have a reaction, I have to continue to avoid that food. If I don't have a reaction, I can eat that food using the 4-day rotation.

Appointments:
I've noticed a very different approach to appointments between the two centers. At The Rothfeld Center, appointments almost always run late. However, the doctors always spend a good amount of time with me and answer all my questions. I never feel rushed. On the other hand, I have to schedule three or four hours out of my day every time I go there.

At The Marino Center, appointments run close to on-time. I've waited up to 15 minutes but usually no longer than that. But appointments are booked every half an hour and if I'm late my appointment gets squeezed. Even when I'm on time, half an hour seems rushed and I don't always have time to get all my questions answered. On the other hand, I'm in and out of there within an hour and I have the rest of the day to live my life.

Results: Fibromyalgia is a tricky condition to treat. It's hard to tell which treatments I've received at either center have helped or not. I've seen several doctors at The Marino Center over the years with varying success. This is the first time I've tried going to The Rothfeld Center and so far, I think their approach is helping overall, but it's hard to pinpoint the results of specific treatments. In either case, I'm glad to have several reputable medical professionals to help me manage this life-altering condition. Now I have more than one resource to turn to when the going gets rough!

Saturday, October 1, 2011

An Awesome Weekend with the Awesome Women Hub Northampton

What would our lives be like if women, or at least the feminine perspective, ran the world? What would the world look like if we collaborated with one another from our essence? How would things shift if we could break down the barriers between generations?

Robin Rice, Shaman and Founder of
the Awesome Women Hub
These are the questions that 30 women (plus even more online) grappled with at a "re-think" tank last weekend sponsored by the Awesome Women Hub in Northampton, MA. We saw a world that was open and loving; a world full of innovation; a world that honored and celebrated our differences. We saw a world that encouraged children to make mistakes in an attempt to find out who they really are and what really turns them on. We saw a job market where people would submit their "essence" resumes that outlined who they are rather than a conventional resume that outlined what they've done. Founder Robin Rice, contemporary shaman extraordinaire, and all the local leaders in Massachusetts created a sacred space for us to bring our true essence to the the table. We created art together and watched as our creation grew and grew with each iteration. We also created a video to honor the powerful young women of the next generation. The score for the video was an original song written and performed by Megon McDonough called "Amazing Things."

www.youtube.com
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Saturday, September 17, 2011

The Gift of Visualization

A Healing Image: Secret Harbor Beach on St. Thomas
I've always been a visual person - I remember faces but not names; I have to write down a math problem in order to solve it and my subconscious sends me amazing images whether in waking dreams, sleeping dreams or shamanic journeys. But it wasn't until recently that I found that I could use that strength to help others.

Over Labor Day weekend, my 84-year-old father ended up in the hospital after passing a gal stone that inflamed his pancreas. His doctors suggested surgery to remove his gal bladder to prevent a similar situation in the future. I was visiting friends in Maine at the time and he was in a hospital in KC. Although I could only call him long distance, I wanted to help him as much as I could. I remembered some mind-body techniques that helped me tremendously when I was facing brain surgery several years ago that I learned from a book and CD by Peggy Huddleston called Prepare for Surgery, Heal Faster. Huddleston's main theory is that going into surgery with a relaxed, positive state of mind helps one feel calmer before surgery, strengthen the immune system, use less pain medication and heal faster. My dad believed that it works because he remembered how calm I was before surgery and what a nervous wreck he was worrying about me. He said he would stay positive and try to relax.

Another technique that I borrowed from Huddleston was to ask my friends and family to send me healing thoughts on the morning of my surgery. When I asked my dad if it was okay for me to make the same request on his behalf, he said, "It couldn't hurt!" When I awoke on the morning of my dad's surgery, I tried to send him healing thoughts, but I couldn't get my mind to settle down. I tried to visualize him wrapped in a blanket of healing light, but other thoughts kept intruding. I was getting very frustrated, because this was so important to me.

Suddenly, I heard a voice inside my head say, "You have a gift - now use it!" Instantly, I was transported to the beach on St. Thomas where I went with friends for rest, relaxation and rejuvenation while healing from bi-lateral lung embolisms. I saw my dad and I on the beach together. I felt the healing warmth of the sun and the gentle breeze in my hair. I heard the relaxing sound of the surf and I saw the beautiful turquoise water. I called my dad before his surgery and told him about my vision of the two of us on the beach in St. Thomas. I wished him good luck and said good-bye.

His surgery went very well that afternoon and he recovered quickly. He didn't even need pain meds when he was in the recovery room! He had good color in his face, good spirits and was able to go home the following day. I called him at home to see how he was doing. He tells me, "So, I'm lying on the gurney (going into surgery) and I'm visualizing the two of us on the beach on St. Thomas." I said, "Really?" And he said, "Pardon my French - no shit, I really did!"

I was thrilled that not only did he take my advice to relax and stay positive before surgery, but he used the exact imagery that my subconscious had conjured up. I'm so happy that my gift for visualization could help someone I love.

My advice to all of you, is to buy Huddleston's book and CD, whether you have an upcoming surgery or not. The Relaxation/Healing CD contains a 20 minute guided visualization to help you relax and doesn't specifically mention surgery. Besides my brain surgery, I've used the guided relaxation for insomnia, menopause symptoms, anxiety, and, of course, fibromyalgia. Huddleston claims the CD (which can also be downloaded as an MP3 file) can help to:

  • Reduce anxiety
  • Treat insomnia
  • Stop headaches
  • Prepare for surgery
  • Reduce chronic pain
  • Speed healing
  • Lessen the side effects of chemotherapy
  • Feel calmer during procedures such as biopsy, endoscope, cardiac catheterization or MRI

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Wednesday, September 7, 2011

My Fall Flare-Up

A photo of trees in a forest in New Jersey, Ea...Image via WikipediaI had just gotten my groove back when the cooler weather crept into New England. At first I noticed that I was more tired than usual and my breasts were tender. Then by the time it was so cold that I had to dig out my jeans and put on closed-toe shoes, my flare-up was in full swing. Now my body is so achy that I have to take a hot bath just to get my stiff joints and muscles moving. A one-bath day isn't so bad, but a two-bath day means symptoms have gotten worse. We don't even want to talk about a three-bath day! Sometimes I'm so tired that I need a nap just to get through the second half of the day, which often means covering a late evening meeting for the local paper. My knees are so painful that they actually sting and my breasts are so sore that it hurts to put on a bra or shirt!

However, compared to last fall when I felt like I was thrown into a black pit, this is more like tripping in a pot-hole and spraining my ankle. I'm limping around but my whole life isn't thrown into chaos. I'm keeping my fingers crossed that this annual flare-up stays at a tolerable level. Of course, I'll keep my readers informed as the autumn progresses. Sometimes it takes several months for the symptoms to calm down.

I'm sure I'm not the only one whose FM is affected by the seasons, or the change of seasons. Let me know about your experiences. Do you feel better in the summer or does the humidity do you in? Do you do better in winter or does the cold weather make your muscles and joints ache even more? Do tell!

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Wednesday, August 31, 2011

Major Changes at National FM Organizations

The National Fibromyalgia Association (NFA) has been in turmoil over the last several years, since the economic downturn in 2007. The Founder and President of the NFA, Lynne Matallana, retired June 1, 2011 after 14 years of dedicated work in serving the FM community. She continues to heal from a terrible accident and major surgery last September, which has impacted her ability to continue with the organization. In the vacuum created by the NFA's financial and organizational troubles, another organization, the National Fibromyalgia and Chronic Pain Association (NFMCPA) was formed and has been collaborating with the NFA. You can read more about the background of these changes in Lynne's own words at the NFA website.

Below is the latest letter from Herb Smith, Chairman of the NFA:


August 2011 Ltr from Herb Smith
August 2011 Ltr from Herb Smith 2

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Saturday, August 27, 2011

Joy's Got Her Groove Back

I'm calling the last twelve months my "lost" year. Not only did I loose all my time and energy in dealing with one health crisis after another, but I lost myself as well. I've been working diligently to reconnect with my personal power, to revive my creative drive and to remember who I really am - a Powerful Creative Being! I've gone on shamanic journeys to retrieve my soul. I've traveled to fun and exotic places to rejuvenate myself. I've worked with my therapist to face my fears and heal my emotional being. And I'm happy to report that it's paying off. I finally feel the call to create; I'm energized by my creative projects and I'm excited about what I'm working on. Let me give you two examples.

My illustration for "Rivkah and the Mice"
Last winter, my rabbi asked me to be on the editorial board to revive our synagogue's literary magazine, Lichora, which has been on hiatus for quite awhile. The board decided to get our first issue out in time for the High Holidays (which are quickly approaching). I wanted to write about the spiritual journey I've taken through my "lost" year, and I told the editor that I would submit an article. But I just didn't have it in me to write the damn thing. Then one morning I woke up and the whole thing came pouring out of me. Still, the rough draft sat on my desk for months. With the deadline looming, I decided it was time to face the empty page and write my article, which has been very cathartic. I could feel my excitement and energy returning as I worked on draft after draft. I also had fun collaborating with my son on a photographic illustration. I had the image in my mind, but not the computer skills to create it. Since my son is studying digital imaging at the College of Arts and Architecture at Penn State, he is a wiz with manipulating images on the computer. He was able to take my vision and make it a reality. As soon as he finishes refining the image, I'll be ready to submit my article and photo illustration to the board.

A few months ago, the leader of my writing critique group brought in an article from the Children's Writer newsletter called "Celebrating Jewish Identity in Books." The article listed the needs of several Jewish publishers and agents, which inspired me to resuscitate a story I had written years ago called "Rivkah and the Mice." Back in 2004, Rivkah won a writing contest for Best Picture Book. Part of the award was the chance for four editors, two from Jewish publishers and two from mainstream publishers, to review my manuscript and dummy for publication. I had such high hopes! But Rivkah received only rejections and she was relegated to the back of my basement. I was so disappointed that Rivkah may never become a full-color picture book for children. But now I'm hopeful again and I've had fun revisiting Rivkah and all the colorful characters in her village. Even if Rivkah receives rejections again, revisiting her has revived my hopeful, creative nature.

So, to recap: reviving Lichora and revisiting Rivkah has resuscitated my drive and reminded me of who I really am. How's that for alliteration?
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Saturday, August 20, 2011

Water Aerobics Saved My Life!

An aqua aerobics class.Image via WikipediaThere is nothing better for fibromyalgia than a water aerobics class outdoors on a sunny summer day! During the long New England winter, the pool at my health club is covered with a bubble that traps in the heat, humidity and chlorine fumes! All the gray-haired ladies and I wait anxiously from Labor Day at the beginning of September until Memorial Day at the end of May for that @#$!! bubble to come down. It has been a glorious summer for outdoor water aerobics this year and I'm trying to get in every last day that I can. All too soon, that bubble will go up and we'll have to suffer through another claustrophobic winter. Of course, water aerobics under the bubble is better than no water aerobics at all, but there is no comparison to exercising in the pool outside in the warm weather.

Ruins of Tulum, Mexico, 0408Image by kaysha via FlickrWhen I was first diagnosed with FM, I went to see one of the top docs for fibromyalgia, Dr. Don Goldenberg. He told me that in order to feel better I had to exercise. I couldn't even imagine exercising since I could barely walk around the block without collapsing on the couch. Dr. Goldenberg told me to try water aerobics because the buoyancy of the water takes the pressure off sore joints and muscles. It took awhile to find the right facility, I've been doing water aerobics in one form or another ever since. I started out in the Nifty Fifty class (well before I was 50), which took things pretty slow. But I built up my strength and my endurance and now that I'm over 50 I'm in a very vigorous aqua fitness class that is actually quite challenging. At 40 I could barely walk around the block and at 50 I could climb the ruins at Tulum, Mexico. Exercise, specifically water aerobics, played a big part in my recovery.

Water aerobics literally saved my life and gave me back a semblance of normalcy. A few years ago I saw Dr. Goldenberg for the last time, and he told me - whatever you do, don't stop the water aerobics. I took his advice to heart and I've kept going three times a week - bubble or not! It makes a huge difference in my life and I make it a priority, even on the bad days.

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