Laughing and crying, you know it's the same release. Joni Mitchell

Laughing and crying, you know it's the same release. Joni Mitchell

Monday, September 17, 2012

Vote in the Chase Community Giving Contest 2012!

Chase Community Giving is giving away $5 million in grants for well-deserving non-profit organizations, including CFS and FM organizations that support research, outreach and patient care. But voting ends on Sept. 19, so don't delay - vote right away!

Last year, Mass CFIDS/ME and FM won a grant for $25,000 in the 2011 contest and it is using the funds to make information on CFS available to nurses and doctors as well as update brochures and other outreach materials. This year, the association is helping other deserving non-profits which focus on CFS get enough votes to win grant money, including Phoenix Rising An NEID Corporation and Neuro Immune Disease Association. 

To vote for Phoenix Rising go to: Phoenix Rising Vote

To vote for Neuro Immune Disease Association go to: Neuro Immune Disease Assoc. Vote

For more information on voting go to: or

Monday, September 10, 2012

Neuropathic Pain Study for FM

English: This is the main entrance of MGH in B...English: This is the main entrance of MGH in Boston, MA. The building on the right is the White Building. The building on the left is the Lunder Building. (Photo credit: Wikipedia)I'm considering participating in a neuropathic pain study for fibromyalgia patients at Massachusetts General Hospital in Boston. I've always wanted to participate in a FM study, but most studies require patients to go off their meds, which scares me. If I'm finally feeling better ON my meds, why would I want to go OFF of them?! This involves a small skin biopsy and does not require the participants to change or drop any medications. I've contacted the study and asked for more information. I'll let you know what I find out and if I will participate.

  • Laboratory Evaluation of Neuropathic Pain
Do you suffer from fibromyalgia?
We seek males and females who suffer from fibromyalgia, to participate in a neuropathic
pain study. You must have never had diabetes. This study involves one to two visits to
Massachusetts General Hospital during which you will have a glucose tolerance blood test to screen for diabetes. Recent normal results of this test can be used instead. You will also have two small punch skin biopsies removed from your lower leg under local anesthesia. Payment for participation is offered. For more information, please contact one of our study staff of The Nerve Injury Unit at 617-726-9391 or email us at
Institution  –  MGH - Massachusetts General Hospital, Boston, MA
Principal Investigator  – Anne Louise Oaklander, MD
Enrollment Information
For further information about enrolling a patient in this trial, contact the person below.
Name  – Kate O'Neil
Email  –
Phone  – 617-726-9391

For more information see:

clinical trial