According to the petition sponsors:
"Of all the issues that we face today, the one issue which has created the most problems is the use of multiple, diverse and overly broad “CFS”definitions. This single issue has severely affected research, drug development and clinical care and has misled the medical community on the very nature of this devastating disease, causing many doctors to dismiss their patients.
Until we stop this confusion over the nature of the disease, patients will continue to pay a terrible price."
I am forwarding the message I received:
On May 12th, 9 ME patient organizations and 26 advocates sent a letter to the Department of Health and Human Services calling on them to start using the Canadian Consensus Criteria for ME, which requires the hallmark symptom of post-exertional malaise. If you do one charitable thing this month, please sign the petition and spread the word to everyone you know. We need 25,000 signatures to get this issue to the White House.
Author Erica Verrillo is helping to drive this petition and will post an article on ProHealth and will promote it on her mailing list and other sites. Thank you to Donna Pearson for all her help in getting this going and thanks to you in advance for posting the petition wherever you can.